tag:blogger.com,1999:blog-863418154094792325.comments2023-04-15T20:20:00.736+08:00How Can I Explain It to You? The Life of a Grad Student with Lupus.SR (gradstdntwlupus)http://www.blogger.com/profile/09309803794369212466noreply@blogger.comBlogger59125tag:blogger.com,1999:blog-863418154094792325.post-32281468385757518532010-06-10T00:57:24.213+08:002010-06-10T00:57:24.213+08:00you are a hero, indeed! :) *hugs* i'd say let ...you are a hero, indeed! :) *hugs* i'd say let me know how you like the movie - but you know i never miss your blog posts so i guess ill find out hahaSRhttps://www.blogger.com/profile/08811681599358423795noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-76651232012014224892010-06-10T00:43:21.278+08:002010-06-10T00:43:21.278+08:00Awwwwwwwwwwwwwwwwwwwwwwwwwwwwww.
Heartwarming.
I a...Awwwwwwwwwwwwwwwwwwwwwwwwwwwwww.<br />Heartwarming.<br />I am a hero.<br />Well, I only partially believe that statement.<br />But I am going to watch the movie.Anniehttps://www.blogger.com/profile/14910318186594054287noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-33396543349786052672010-06-08T21:30:23.389+08:002010-06-08T21:30:23.389+08:00hi......
my teacher was explaining pain as a usefu...hi......<br />my teacher was explaining pain as a useful phenomenon as it lets us no wats wrong in the body.....<br />but wat abt this permanent pain????<br />he dint tell......huhhh!!!!!!!<br />weel,<br />i understand ur chronic pain.<br />i too hv it..<br />i hv JRA since i was 7 now i m 17..<br />hv 10 years experience...<br />bt dnt worry v can fight<br />pain has made us stronger..<br />take care..!simplycomplexhttps://www.blogger.com/profile/11366972956065491837noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-69776384642884192342010-05-31T16:43:04.805+08:002010-05-31T16:43:04.805+08:00valid points indeed...
@Melanie: i think it's...valid points indeed...<br /><br />@Melanie: i think it's a lot easier to admit that a family member has lupus vs you have lupus. i also think it leads to a lot less awareness. i mean, if she does have lupus people will continue to talk about it as it's a chronic illness, but people will forget her aunt had lupus pretty fast - i would guess that a lot of people already have... but youre right, at least people are talking about it... so they might recognize the name if they hear about it again. <br /><br />hopefully she'll take up the cause regardless as you suggested! :)SRhttps://www.blogger.com/profile/08811681599358423795noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-86087553944770659932010-05-31T11:20:20.802+08:002010-05-31T11:20:20.802+08:00I don't really know how I feel about this. Whe...I don't really know how I feel about this. When I read the interview she gave it seemed like she all but said she had lupus. I did not like that she toyed with the issue and left it all up in the air. But maybe even if she never comes out with whether she has it or not, just her even mentioning it will spark more conversation about it. Also in the interview she said she had an aunt who died from lupus. Maybe this will lead her to take up the cause despite her health status?Melaniehttps://www.blogger.com/profile/04037584714439738592noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-87836306378449260992010-05-30T23:42:15.218+08:002010-05-30T23:42:15.218+08:00Ugh, the idea of her potentially having Lupus brea...Ugh, the idea of her potentially having Lupus breaks my heart. These are diseases that no one would wish on anyone. Sure it would bring awareness. Sure awareness is good and necessary. But the fact that we would have to cheer on a celebrity for getting sick makes me feel ill.<br /><br />On the plus side, I hope all is well! xoAnniehttps://www.blogger.com/profile/14910318186594054287noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-76973150733569439902010-05-26T20:48:16.598+08:002010-05-26T20:48:16.598+08:00I'm trying to think if I've seen many port...I'm trying to think if I've seen many portrayals of Fibromyalgia in film/tv. Nothing is really coming to mind. There was a mention of CFS on the US of Tara the other day (referring only to excessive fatigue) which I found insulting - as there are a million facets to the illness.<br /><br />Bah.<br /><br />The problem is that these types of illnesses harm every single part of the body...and no one watching tv wants to know about it.<br /><br />Hope all is well darling!Anniehttps://www.blogger.com/profile/14910318186594054287noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-69431312188624839272010-05-26T10:08:20.030+08:002010-05-26T10:08:20.030+08:00I think portraying the frustration that many (norm...I think portraying the frustration that many (normally very active) people with fibromyalgia feel at not being able to "keep up" with their daily lives because of debilitating pain and fatigue would be helpful. I think there is a stigma about fibromyalgia that people who complain of the symptoms are "lazy", "bored", "depressed", "craving attention", "don't get enough exercise",etc. I hope that as new information and awareness develops, society will realize that the disease (or syndrome, or disorder, or whatever "they" are going to call it) is real and not imagined.Jaimehttps://www.blogger.com/profile/05049693274157106141noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-52199707381500340022010-05-24T23:54:30.841+08:002010-05-24T23:54:30.841+08:00hey, Tricia! welcome :)
i didn't tell the man...hey, Tricia! welcome :)<br /><br />i didn't tell the manager... mostly because I believe in giving people the chance to make informed choices. i figured that given that society doesn't expect someone in their mid-20s to be ill and that my disease is pretty invisible to the untrained eye (and that she may legitimately not realize that people can be ill without appearing so) , she may have been pretty oblivious. which certainly doesn't justify her comment, but at least she has a chance to recognize her mistake.<br /><br />if i get a comment like that from her again though, i will most probably ask to speak to the manager.SRhttps://www.blogger.com/profile/08811681599358423795noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-41315081137217707042010-05-24T22:48:45.916+08:002010-05-24T22:48:45.916+08:00Ohmigosh! That makes me so angry. Did you tell the...Ohmigosh! That makes me so angry. Did you tell the salon manager? A salon should make you feel inviting and comforting. I would tell the manager that you will go someplace else if she continues to make inappropriate comments. That comment would be interpreted as insulting to anyone especially in your position.Triciahttps://www.blogger.com/profile/01674942109993731593noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-38858400765785674262010-05-23T09:27:44.753+08:002010-05-23T09:27:44.753+08:00<3 thanks, Shweta! i hope you are doing well th...<3 thanks, Shweta! i hope you are doing well these days :)SRhttps://www.blogger.com/profile/08811681599358423795noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-86229621612797749062010-05-23T01:44:26.330+08:002010-05-23T01:44:26.330+08:00Im really sorry that u are facing so much trouble....Im really sorry that u are facing so much trouble. School and tests make it even harder to deal with pain. I so hope that ur meds start working soon. I really really do. Take care.Shweta Chaubeyhttps://www.blogger.com/profile/04780544215237456132noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-59774972316404425292010-05-22T01:44:07.681+08:002010-05-22T01:44:07.681+08:00I think that continuing to fight can give us a psy...I think that continuing to fight can give us a psychological boost, but only to a certain extent. After a certain point, it can become depressing to fight and fight and fight, but not see the results you hope for.<br /><br />I've chosen to accept certain parts of having lupus (there will be good times and there will also be bad times), but I also choose to fight against other parts (I will continue to strive to do the outdoor/physical activities that I always loved to do, even though they are extremely difficult). This keeps my mind relatively balanced.<br /><br />Relatively being the key word...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-27755240588805922952010-05-21T12:36:47.120+08:002010-05-21T12:36:47.120+08:00i see you reposted, thanks for linking back :)
@A...i see you reposted, thanks for linking back :)<br /><br />@Annie -- it has been one ROUGH week. but im hanging in there. hope you are too!SRhttps://www.blogger.com/profile/08811681599358423795noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-7958267664201621742010-05-21T10:58:30.437+08:002010-05-21T10:58:30.437+08:00that is fab... thanks for sharing.. do you mind if...that is fab... thanks for sharing.. do you mind if I post on my blog?RA/LUPUS GIRLhttps://www.blogger.com/profile/16870722945416966329noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-55542196068585048782010-05-20T09:37:25.422+08:002010-05-20T09:37:25.422+08:00I'm so going to send this to some of the peopl...I'm so going to send this to some of the people I know!<br /><br />Hope you are doing as well as you can be right now SR!Anniehttps://www.blogger.com/profile/14910318186594054287noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-27826142888698328832010-05-17T20:13:13.179+08:002010-05-17T20:13:13.179+08:00Thoughts are that I have the same damn thought eve...Thoughts are that I have the same damn thought every single day :(<br /><br />My fibromyalgia (although I think it is something more complex...) is getting progressively worse too. Most of my meds have stopped working.<br /><br />It's too bad we all live around the globe or I would recommend we all line up our beds and watch movies :)Anniehttps://www.blogger.com/profile/14910318186594054287noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-64059510141177945732010-05-16T10:05:23.859+08:002010-05-16T10:05:23.859+08:00SR, this post was awesome. You hit the nail right...SR, this post was awesome. You hit the nail right on the head, as that is exactly how I feel about the whole situation. <br /><br />Hope you are doing OK!<br /><br />xoxoAnniehttps://www.blogger.com/profile/14910318186594054287noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-52796113100021243792010-05-13T12:40:39.444+08:002010-05-13T12:40:39.444+08:00<3 thanks ladies! xoxo
it's gotten signific...<3 thanks ladies! xoxo<br />it's gotten significantly worse since I posted this entry... but the Lyrica hasn't had time to kick in yet, so still trying to keep my hopes up! sigh.SRhttps://www.blogger.com/profile/08811681599358423795noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-18558715291953971112010-05-12T17:55:24.992+08:002010-05-12T17:55:24.992+08:00u know i read ur post last evening before wrapping...u know i read ur post last evening before wrapping up work...and the thought of it has been crossing my head since then (how we keep wishing this ordeal comes to an end and then doctors come up with such disheartening observations!)...i really pray that things improve for u....<br />take care of urself...hugs..Shweta Chaubeyhttps://www.blogger.com/profile/04780544215237456132noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-84605243585285408812010-05-12T10:00:23.100+08:002010-05-12T10:00:23.100+08:00take care of yourself.. I hope it works for you. ...take care of yourself.. I hope it works for you. my fingers are crossedRA/LUPUS GIRLhttps://www.blogger.com/profile/16870722945416966329noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-48880127194497204382010-05-12T04:36:29.122+08:002010-05-12T04:36:29.122+08:00It hasn't for me, but I'm crossing my fing...It hasn't for me, but I'm crossing my fingers for you!!Anniehttps://www.blogger.com/profile/14910318186594054287noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-13047711159634998532010-05-11T03:26:55.828+08:002010-05-11T03:26:55.828+08:00Nice people on the Internet like you!
Art/Music!
T...Nice people on the Internet like you!<br />Art/Music!<br />The dream of better days!<br /><br />...yeah, I'm not gonna lie...that's about it haha.Anniehttps://www.blogger.com/profile/14910318186594054287noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-78961372232618487712010-05-10T23:28:51.225+08:002010-05-10T23:28:51.225+08:00<3 (not sure why i have 2 accounts..maybe cuz o...<3 (not sure why i have 2 accounts..maybe cuz of 2 gmail addresses?)Eshahttps://www.blogger.com/profile/10792620071214860803noreply@blogger.comtag:blogger.com,1999:blog-863418154094792325.post-32096633821504871192010-05-10T23:14:11.158+08:002010-05-10T23:14:11.158+08:00This comment has been removed by the author.eprhttps://www.blogger.com/profile/09364299272465865663noreply@blogger.com